RaTTuS007 wrote:As another dad whose had to stand by helplessly as his child suffers, I know exactly the confusion, anger, fears and stress. I wish the little one a speedy recovery.
Artful-dodgeR wrote:We find out today if she has a rare condition called Skimitar Syndrome, a stupidly rare one called Accessory Diaphragm (rare enough for this kids hospital to have never seen a case, ever) or even rarer, both simultaneously. Or neither. Its showing signs of both but without a CT they couldn't confirm... and she's booked in to that this morning.
Artful-dodgeR wrote:She's got Skimitar syndrome confirmed, accessory diaphragm won't be confirmed until surgery is done, and that won't be done for a few months. Have a case review with cardio, respiration, feeding, medical and radiology on Monday but likely to go home hopefully some time soon. Our understanding is that she can't be fixed until she grows for a few months.
Also, thanks heaps
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