Thank you GON.

[Trixxter]

Best thoughts and wishes for your Daughter mate and hope she pulls through well.

[discobrad]

reading this with my 9 week old daughter on my lap...makes me very very grateful she is healthy and hope like hell your little one recovers soon - all the best!

[Drakand]

my thoughts are with you and yours. I need the little lady to get back up and running soon so you can instruct her in the art of demo-bombing me on viaduct

but yes, all my thoughts with you and your family, glad you know you've got all this support available!

Thanks to GON community as well, you all show that there is some fantastic community spirit online when people are in need like this, i'm glad to be able to consider myself a part of this gathering!

[MuscularTeeth]

hey mate, as you know ive been following your trials in our thread "im going to be a dad".
you and your other half are doing so well, in tough times that i think you deserve a medal.. You both are doing an amazing job during such a difficult time, and one day you can ground your little one an extra few months for what she is putting you through.

keep it up

[Artful-dodgeR]

Thanks for all the kind wishes guys.

We find out today if she has a rare condition called Skimitar Syndrome, a stupidly rare one called Accessory Diaphragm (rare enough for this kids hospital to have never seen a case, ever) or even rarer, both simultaneously. Or neither. Its showing signs of both but without a CT they couldn't confirm... and she's booked in to that this morning. Has to go under which I've been told is horrible to watch as a parent as they look dead (partner is an ex-theatre nurse from this hospital). Fun fun.

One of the doctors joked that it was like an episode of House. I kinda have to agree. Except its not lupus.

Again, cheers for the wishes, hoping it all goes well.

[CelticAngel82]

you really do need House.
srsly though, i really do hope it all turns out well.
<3

[Toll Meyer]

As another dad whose had to stand by helplessly as his child suffers, I know exactly the confusion, anger, fears and stress. I wish the little one a speedy recovery.

Have been there as well and you really do feel helpless and lost.

Best wishes to you, your partner and especially your little one!

Keep yourself strong and stay balanced, even it's just focusing on taking deep and slow breaths for a few seconds.

[MunchY]

At the very least man, it's progress. Keep troopin'

[vo1tr0n]

We find out today if she has a rare condition called Skimitar Syndrome, a stupidly rare one called Accessory Diaphragm (rare enough for this kids hospital to have never seen a case, ever) or even rarer, both simultaneously. Or neither. Its showing signs of both but without a CT they couldn't confirm... and she's booked in to that this morning.

Any news or updates for us? Have they determined what it wrong, and more importantly, is she getting any better as a result?

[Artful-dodgeR]

She's got Skimitar syndrome confirmed, accessory diaphragm won't be confirmed until surgery is done, and that won't be done for a few months. Have a case review with cardio, respiration, feeding, medical and radiology on Monday but likely to go home hopefully some time soon. Our understanding is that she can't be fixed until she grows for a few months.

Also, thanks heaps

[lucassot]

She's got Skimitar syndrome confirmed, accessory diaphragm won't be confirmed until surgery is done, and that won't be done for a few months. Have a case review with cardio, respiration, feeding, medical and radiology on Monday but likely to go home hopefully some time soon. Our understanding is that she can't be fixed until she grows for a few months.

Also, thanks heaps

[ http://img.tapatalk.com/3cf29322-c6ea-af73.jpg ]

[Fireslide]

Hey thanks for the update. At least you know now and her case has the attention of the people who are best equipped to help, so that's some small relief.

PS. That's a pretty happy looking balloon :)

[Artful-dodgeR]

Its from GON, it should be pretty happy

[Matty]

I'm glad you liked them

[CrazyMonkey]

Keep on smiling mate